|
|
|
Be sure to visit our Photo
Gallery to view a wide variety of pictures taken of those members who attended our Little
Hearts annual picnic. Underneath each photo is their first name, their diagnosis, and the year they were born. The Gallery includes a musical slide show that
allows you to cherish each image of hope.
Our 2008 "Heart Kid Video" is now online! As you watch it, you can spot the heart kids as they are wearing a name tag with 2 or 3 red heart stickers on it.
We only had a few of the heart kids join us in the filming as it appears that they would rather play and have fun than meet another heart kid and be videotaped! Next year, we'll walk around filming them as they jump around in the moonwalks or join in a game of baseball or paddle away in a canoe!
To see the photo of kids with HLHS who attended the picnic - also referred to as Little Hearts Picture of HOPE/HLHS 2008 - scroll down to the bottom of the page. You'll see a photo of 52 kids ranging in age from a few months old to 23 years of age.
|
Picture of HOPE/CHD 2008
|
| |
Above photo
includes
139
"kids" with CHD who attended
our 12th annual picnic.
Breakdown by
diagnosis:
|
Aortic Stenosis (AS) - 3
Atrial Septal Defect (ASD) - 3
Atrioventricular Canal Defect (AVCD) - 3
Cardiomyopathy - 1
Coarctation of the Aorta (COA) - 7
Double Inlet Left Ventricle (DILV) - 3
Double Outlet Right Ventricle (DORV) - 9
Ebstein's Anomaly - 1
HLHS - 52
Pulmonary Atresia (PA) - 6
Pulmonary Stenosis (PS) - 2
|
Shone's Syndrome - 2
Single Ventricle - 1
Sinus Venosus - 1
Tetralogy of Fallot - 17
Transposition Great Arteries - 15
Tricuspid Atresia -66
Tricuspid Stenosis -12
Truncus - 2
VSD - 2
WPW - 1
|
| |
|
| |
Here are the heart "kids" who attended our 12th annual picnic. The year they were born is listed first followed by their first name and the diagnosis they were born with. If you visit our 2008 slideshow, you can see a photo of each heart child. |
Many thanks to
Half Cirle of Full Circle
www.pemdesign.com
www.psolka-photo.com
for their music and photos!
|
| |
1958 - David - ASD, Cleft Valve
1960 - Kimberly - DILV, PS
1965 - Bill - Tricuspid Atresia
1966 - Michael - ASD
1985 - Taryn - HLHS
1988- Kenneth - HLHS
1990 - Alex - HLHS
1990 - Ben - HLHS
1991 - Josie - HLHS
1992 - Alicia - DORV, PS
1992 - Ashley - HLHS
1993 - Alex - HLHS
1993 - Christian - HLHS
1994 - Evan - TOF, TGA
1994 - Andrew - PA, TGA, VSD
1996 - Jeffrey - HLHS
1996 - Adam - TOF, PS
1996 - Andrew - TOF
1997 - Joey - HLHS
1997 - Timothy - HLHS
1997 - Matthew - HLHS
1998 - Isaac - TA, PS
1998 - Logan - COA, MVS
1998 - Jacob - HLHS
1998 - Michael - HLHS, PS
1998 - Zachary - DORV
1998 - Leah - AS, COA, ASD
1998 - Kyle - HLHS
1998 - Ben - HLHS
1998 - Maria - HLHS
1999 - Quinn - HLHS
1999 - Jacob - HLHS, TAPVR
1999 - Angelo - HLHS
1999 - Christopher - HLHS
1999 - Tyler - TGA
1999 - Nicholas - HLHS
1999 - Mollie - TGA
1999 - Pablo - TGA, VSD, PS
1999 - Drew - COA, ASD
1999 - Jake - HLHS
2000 - Adam - HLHS
2000 - Russell - HLHS
2000 - Zachary - TGA, VSDs
2000 - Amelia - PA, VSD
2001 - Andrea - DORV, PS
2001 - Timothy - HLHS
2001 - David - HLHS
2001 - Nicholas - Sinus Venosus
2001 - Brendan - HLHS
2001 - Cameron - TA
2001 - Christopher - DORV
2001 - Daena - HLHS
2001 - Adam - DORV, MA
2001 - Kelly - HLHS
2001 - Jennifer - TA
2002 - Tyler - TOF
2002 - Ryan - TOF
2002 - Isabella - HLHS
2002 - Alex - ASD primum
2002 - Eddie - TOF, PA
2002 - Anthony - DILV
2002 - Aaron - TGA
2002 - Bryna - TOF
2003 - Alec - HLHS
2003 - Daniel - HLHS
2003 - Abigail - HLHS
2003 - Jillian - L-TGA, PA
2003 - Emma - TGA, PS
2003 - Trevor - PS
|
2003 - Anthony - TOF, PA
2003 - David - TOF, PA
2003 - Alice - Aortic origin PA
2004 - Ewan - Tricuspid Atresia
2004 - Lilliana - VSD
2004 - Michael - TOF, PS
2004 - David - TOF, PA
2004 - Olivia - PA, PS
2004 - Pietro - PA
2004 - Andrew - HLHS
2004 - Megan - HLHS
2004 - Cameron - AS
2004 - Janey - TOF, PA
2004 - Andrew - HLHS
2004 - Zachary - Shone's
2005 - Elena - TOF
2005 - Dale - TGA
2005 - Ariana - TGA, VSD
2005 - Bryce - HLHS w/IAS
2005 - Kallie - HLHS
2005 - Alex - COA, AS
2005 - Eden - DORV, PS
2005 - Abigail - AS
2005 - Benjamin - AVCD
2005 - Daniel - TOF, PA
2005 - Noelle - SV
2005 - Akshaj - TGA, VSD
2005 - Emilia - TA, VSD
2005 - Ellie - AVCD, VSD
2005 - Cora - HLHS
2005 - Delaney - COA, VSDs
2005 - Faith - DILV, VSD
2005 - Nathan - DORV
2005 - Dylan - DORV, TGA
2005 - Olivia - HLHS
2005 - Makayla - TOF
2005 - Audrey - PA, VSD
2005 - Maggie - HLHS
2005 - Lindsay - HLHS
2005 - Kaitlyn - AVCD
2005 - Will - WPW
2005 - Andrew - TGA, COA
2005 - Joseph - HLHS
2006 - Melissa - TGA
2006 - Aoife - Truncus
2006 - Skylar - COA, VSDs
2006 - Ella - HLHS
2006 - Carter - DORV, PS
2006 - Robert= - ASD, PS
2006 - Jack - HLHS
2006 - Katherine - HLHS
2006 - Greta - HLHS
2006 - Blake - HLHS
2006 - Charlie - VSD
2006 - Annabel - HLHS
2006 - Kailyn - HLHS
2006 - Lillian - COA, AS
2006 - Samantha - TGA
2007 - Taylor - Truncus
2007 - Jonah - TGA
2007 - Christian - TOF
2007 - Eva - HLHS
2007 - Ava - TS, PS
2007 - John - Ebstein's
2007 - Emily - TGA, VSDs
2007 - Penelope - TOF, PA
2007 - Jillian - Shone's
2007 - Juliann - Cardiomyopathy
2007 - Mia - TOF
2008 - Teagan - TGA
|
|
| |
|
|
|
|
Picture of HOPE/HLHS 2008
52 kids born with HLHS - here they are by
their date of birth:
1985 - Taryn
1988 - Kenneth
1990 - Alex, Ben
1991 - Josie
1992 - Ashley
1993 - Alex, Christian
1996 - Jeffrey
1997 - Joey, Matthew, Timothy
1998 - Ben, Jacob, Kyle, Maria, Michael
1999 - Angelo, Christopher, Jacob, Jake, Nicholas, Quinn
2000 - Adam, Russell
2001 - Brendan, Daena, David, Kelly, Timothy
2002 - Isabella
2003 - Abigail, Alec, Daniel
2004 - Andrew B, Andrew P, Megan
2005 - Bryce, Cora, Joseph, Kallie, Lindsay, Maggie, Olivia
2006 - Annabel, Blake, Ella, Greta, Jack, Kailyn, Katherine
2007 - Eva
Here are just a few that could be in Little Hearts Picture of HOPE/HLHS 2008. Just in our organization alone, we have 450 HLHS survivors as of June 1st.
If you're looking for current HLHS statistics, please contact a children's hospital that performs the Norwood (stage 1) and ask how many they do in a calendar year. (For example, CHOP, Boston, MCHC do about 60 Norwoods a year). Hospitals don't put their stats on their site because they are misleading as they need to be "risk adjusted". Results for an 8 pound baby will be different than in a 4 1/2 pound baby. So, be careful of the information you find online. We don't recommend you search the internet for this information.
These photos are dedicated to the brilliant cardiothoracic surgeons and supportive pediatric cardiologists who've made it possible for our children to have a second chance at life. Some have had a rougher road than others but it has all been worth it. Many thanks to you all.
Back to Top
|
